Sunday, December 05, 2010

The Next Part

Alright, so irritated as I was (am) with these lesions, the next step was a spinal tap. Lumbar puncture. Giant needle going into my body while I am curled in a fetal position as my India-born Nuerologist is behind me (he's the guy with the needle) and it was NOT a fun experience, but it wasn't as bad as I had heard about. The first needle was the anesthesia and that poke hurt like a bitch. And the second needle? Well, I could tell it was larger, and the feeling of just a Wrongness, this pressure in the middle of my body was just...ick. It didn't hurt, it just felt waaaay odd.

And when I first got there and had to change into a hospital gown I didn't realize there was a fricking camera in a black bubble on the ceiling and somebody got a free show, but I've dealt with that.

I waited weeks for the results of that test. Finally, when I couldn't stand it anymore, I moved my Monday appointment to the Friday before. Long story short (and it was short because my Dr India doesn't really like to chat. He mutters and I catch a few words and ask him to repeat it. I continue this way until I have gleaned all the information I can from him) I have fricking Multiple Sclerosis. Blast it.

The next week I went to the hospital every evening for five days for an IV drip of a super-steroid called Solu Medrol. Dr. India said it would help reduce the inflammation on my optic nerve and perhaps my vision would improve. So I said Why The Fuck Not? (I didn't really say that.) I educated myself on the process beforehand. I read the studies and side-effects and benefits and disclaimers and balogna and decided to do it. My vision is that bad. So I went and I didn't have to get undressed, which was awesome. I got t o sit in an armchair and watch a tv with real channels(!) as a nurse jabbed another big fricking needle in my arm to put poison in me. It hurt and it tasted HORRIBLE ABSOLUTELY HORRIBLE the nastiness of the nasty. It wasn't a taste, more like a ...smell-taste. It's hard to describe. I could smell-taste the saline they cleared my vein with first too, but it was tolerable. The SoluMedrol tastes like dirty old copper pennies in the back of your throat. Oh lord it was HORRIBLE. Sorry, I'm remembering how HORRIBLE it was.Yech! Anyhow, I had a pain in my arm and the drip had to be slowed, which meant it then took forever but that was all right because I got to watch the new Hoarders which is always good.

I got to leave this thing in my arm (the needle and some tubing) so they didn't have to repoke me. It was bandaged up quite nicely. I learned after the first night to put some cotton or gauze under the tubing so my skin wasn't hurting pushed against it all night. This was hard for me to deal with. It's not that I hate needles. I give blood on a regular basis. It's just the whole...thing. I don't understand it. I hate IVs. I begged my OB/GYN with my last pregnancy to please don't let them put an IV in me pleeease but got to have one anyways dammit and all I did was bug the nurses until they let me take it out. I didn't want a needle to come home with me! I suffered through this for five days. The horrible taste? It wasn't AS bad as the very first time, but it was still gross. And everything afterwards tastes okay in your mouth, but as soon as it hits the back of your throat ICK. I learned to eat before I started the treatment.

Next time we're going to talk about the side effects from the SoluMedrol. They were superfuckedup and I just got over them 9/10. 9/26 was the first day I felt "normal" since going through this treatment.

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